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Doctor and Patient

NHS Continuing Healthcare (CHC)

Are you or a loved one facing significant, ongoing health needs? You may be entitled to NHS Continuing Healthcare (CHC) – a crucial, fully-funded package of care provided by the NHS. Unlike social care, CHC is not means-tested, meaning the NHS covers all assessed care costs, including accommodation in a care home, if a "primary health need" is identified. This means your care requirements are primarily health-related, not social.

However, navigating the CHC assessment process can be incredibly complex and often overwhelming. It involves detailed Checklist and Multi-Disciplinary Team (MDT) assessments using a Decision Support Tool (DST) to evaluate the nature, intensity, complexity, and unpredictability of needs.  "Continuing Healthcare" (often abbreviated to NHS CHC or just CHC) in the UK refers to a package of care for adults aged 18 or over that is arranged and funded solely by the NHS (National Health Service).

 

This means that if someone is eligible for NHS CHC, the NHS pays 100% of their care costs, regardless of their income or assets. This is a significant distinction from local authority (social services) funding for care, which is usually means-tested (meaning you contribute to the cost based on your financial situation).

Here's a breakdown of what "Continuing Healthcare" means, its implications, and how eligibility is determined:

What is NHS Continuing Healthcare (CHC)?

  • Full NHS Funding: It covers all assessed care needs, whether that care is provided in your own home, in a care home, or in another care setting. If care is in a care home, it covers accommodation, personal care, and nursing care.

  • Primary Health Need: The key criterion for eligibility is that an individual must have a "primary health need." This means that the main reason for their care is due to their health needs, rather than social or personal care needs. The definition of a "primary health need" is crucial and often misunderstood. It's not about a specific diagnosis (e.g., dementia or Parkinson's doesn't automatically qualify), but about the nature, complexity, intensity, and unpredictability of the care required.

  • Complex, Intense, Unpredictable Needs: Individuals who qualify typically have complex, substantial, and ongoing health needs that require sophisticated, skilled, or frequent interventions to manage. This can include needs related to:

    • Behaviour

    • Cognition (e.g., severe memory problems affecting daily safety)

    • Psychological and emotional needs

    • Communication

    • Mobility

    • Nutrition (e.g., requiring tube feeding)

    • Continence (e.g., complex catheter care)

    • Skin and tissue viability (e.g., severe pressure sores)

    • Breathing (e.g., requiring oxygen or ventilator)

    • Drug therapies and medication (e.g., complex medication regimes requiring skilled administration)

    • Altered states of consciousness

    • Other significant care needs

Implications of "Continuing Healthcare":

  • Financial Relief: For those who qualify, it means complete financial relief from care costs, which can be substantial and otherwise deplete savings and assets.

  • Comprehensive Care Package: The NHS is responsible for arranging and funding a comprehensive care package that meets all identified health and associated social care needs.

  • Personal Health Budgets: If care is provided at home, eligible individuals may be offered a Personal Health Budget (PHB), which gives them more control over how their care is planned and delivered.

  • Reviews: Eligibility for CHC is not necessarily permanent. It is reviewed regularly (typically after three months and then annually) to ensure that the individual's needs still meet the criteria. This means funding can potentially be withdrawn if needs reduce.

The Assessment Process:

The process for determining eligibility for NHS CHC is detailed and follows a national framework. It typically involves two stages:

  • The Checklist: This is an initial screening tool completed by a health or social care professional (e.g., nurse, social worker, GP). It helps determine if a full assessment for CHC is required. A positive Checklist does not mean you are eligible for CHC, only that you should proceed to a full assessment.

  • The Full Assessment (Decision Support Tool - DST): If the Checklist is positive, a Multi-Disciplinary Team (MDT) of health and social care professionals (who are involved in the individual's care) will conduct a comprehensive assessment using the Decision Support Tool (DST). They gather evidence from all relevant records and typically hold a meeting with the individual and/or their representative. The MDT makes a recommendation on eligibility to the Integrated Care Board (ICB), which makes the final decision.

  • Fast Track Pathway: For individuals with a rapidly deteriorating condition, especially those who are nearing the end of life, there is a "Fast Track" process to ensure care is put in place quickly (often within 48 hours) without needing to go through the full DST process.

Why is it complex and why might you need professional help?

The process for assessing CHC is notoriously complex and can be inconsistent across different areas. Many families find it confusing, lengthy, and challenging to navigate. Professionals, such as specialist solicitors or advocates (like Beacon CHC), often assist individuals and families to:

  • Understand the eligibility criteria.

  • Gather the necessary evidence.

  • Present a strong case during the assessment.

  • Challenge negative decisions through the appeals process (which can go through local resolution and then to an Independent Review Panel if necessary).

In summary, "Continuing Healthcare" is a vital form of NHS funding for individuals with significant ongoing health needs. While it provides immense financial and practical support, the assessment process to secure it is rigorous and often requires careful preparation and perseverance.

Services

Service 1: CHC Eligibility Assessment

& Guidance

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This service is designed for individuals and families who are unsure whether they or their loved one might be eligible for NHS Continuing Healthcare (CHC) funding. It provides an expert review of the individual's current health and care needs, a preliminary assessment against CHC criteria, and clear guidance on the next steps, including whether to pursue a full CHC assessment. This is an ideal starting point to avoid unnecessary, lengthy, and emotionally draining formal assessments if eligibility is unlikely.

  • Cost: £950 (plus VAT)​

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Detailed Plan:

  • Initial Consultation (60 minutes, remote or face to face):

  • A comprehensive discussion with the client(s) to understand the individual's current health condition, daily care needs, medical history, and any previous interactions with health or social care services regarding funding.

  • Explanation of the NHS CHC eligibility criteria and the overall assessment process.

  • Clarification of client expectations and goals.

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Document Collection & Review:

  • Guidance to the client on how to obtain relevant medical and care records (e.g., GP notes, hospital discharge summaries, care home records, social care assessments).

  • Thorough review and analysis of all provided documentation to identify key health needs, patterns of care, and evidence relevant to the 12 CHC care domains (e.g., behaviour, cognition, breathing, continence, mobility, medication).

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Preliminary CHC Needs Analysis:

  • Based on the collected information and documentation, conduct a detailed analysis of the individual's needs against the National Framework for NHS Continuing Healthcare criteria.

  • Identify potential 'primary health need' indicators (nature, complexity, intensity, unpredictability).

  • Highlight strengths and weaknesses in the existing evidence for a CHC claim.

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Comprehensive Written Report:

  • Produce a clear, concise, and easy-to-understand written report summarising the findings.

  • The report will provide an expert opinion on the likelihood of CHC eligibility.

  • It will clearly outline the specific care domains where the individual's needs appear to meet (or fall short of) CHC thresholds.

  • Provide strategic recommendations on whether to proceed with a formal CHC Checklist and/or full Decision Support Tool (DST) assessment.

  • Advise on any additional evidence or documentation that would strengthen a potential application.

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Feedback & Next Steps Consultation (60 minutes, remote or face to face):

  • A dedicated session to present and discuss the findings of the report with the client(s).

  • Answer any questions and provide clear, actionable advice on the recommended next steps.

  • Outline the process for a formal CHC application if deemed appropriate.

Service 2: CHC Assessment & MDT Meeting Advocacy

 

This service provides expert advocacy and support throughout the formal NHS Continuing Healthcare assessment process, specifically focusing on the Multi-Disciplinary Team (MDT) meeting. Our goal is to ensure that the individual's care needs are accurately and robustly presented, maximising the chances of a fair and positive eligibility decision. This service is for 'current' assessments and does not typically cover retrospective claims.

Cost: £3,500 (plus VAT)

Detailed Plan:

Pre-MDT Strategy Session (90 minutes, remote or face to face):

  • In-depth discussion with the client(s) to gather detailed, up-to-date information on the individual's needs across all 12 CHC domains.

  • Review of any existing preliminary assessments (e.g., Checklist results) and medical/care records.

  • Develop a clear strategy for presenting the case at the MDT, highlighting the 'primary health need' and core care requirements.

  • Explain the MDT process, roles of attendees, and what to expect.

Comprehensive Evidence Review & Preparation:

  • Systematic review of all available medical, nursing, and social care records (requested by the client through Subject Access Requests if not already provided).

  • Identification of gaps in documentation and advice on how to obtain further supporting evidence if necessary (e.g., from GPs, specialists, or care staff).

  • Preparation of a detailed written submission or "Statement of Needs" for the MDT, meticulously linking the individual's care needs to the CHC eligibility criteria and evidence. This document will be shared with the MDT in advance if possible.

MDT Meeting Attendance & Advocacy:

  • Attend the Multi-Disciplinary Team (MDT) meeting alongside the client(s) (in-person or virtually, as arranged by the ICB).

  • Act as the client's advocate, ensuring that all relevant aspects of the individual's needs are accurately considered and presented by the professionals.

  • Challenge any inaccuracies or misinterpretations of the evidence or criteria by the MDT members.

  • Ensure the MDT adequately addresses the 'primary health need' test and the four key characteristics (nature, complexity, intensity, unpredictability).

  • Take detailed notes of the meeting.

Review of Decision Support Tool (DST) & Recommendation:

  • Upon receipt of the completed Decision Support Tool (DST) from the MDT, conduct a thorough review to ensure it accurately reflects the discussions and evidence presented.

  • Provide expert feedback to the client on the MDT's recommendation (eligibility or non-eligibility) and its rationale.

Post-MDT Guidance & Next Steps:

  • Advice on accepting the recommendation or, if non-eligible, guidance on the appeals process (Local Resolution Meeting) and the strength of a potential appeal.

  • Outline any further actions required from the client or the advocate.

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